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As knowledge in rare neurological disorders is scarce and scattered, we do hope that these webinars presented by European and international experts will be useful to healthcare professionals and ultimately benefit patients.
Time: 15-16h CET (3-4PM)
11.01.2022 | ‘Anti-spastic therapies in Hereditary Spastic Paraplegia’ by Marcondes C. França Jr., School of Medical Sciences, University Campinas (UNICAMP), Brasil. SIGN UP here
25.01.2022 | ‘ASO RNA splice modulating therapies for genetic brain disorders’ by W.M.C. van Roon-Mom, University of Leiden, the Netherlands. SIGN UP here
01.02.2022 | ‘Learning by example: HD-JUNIOR a national registry for patients with juvenile onset Huntington’s Disease’ by Hannah Bakels, Leiden University Medical Center, the Netherlands. SIGN UP here
08.02.2022 | ‘The overlap between the spectrum of frontotemporal dementias and atypical Parkinsonism’ by Vasilios Constantinides, National and Kapodistrian University of Athens, Greece. SIGN UP here
15.02.2022 | ’New MDS criteria for clinical diagnosis of MSA’ by Gregor Wenning and Iva Stankovic, Medical University Innsbruck; Institute of Neurology, University of Belgrade, Serbia. SIGN UP here
08.03.2022 | ‘Brain Development in Huntington’s Disease’ by Peggy Nopoulos, Carver College of Medicine, University of Iowa, USA. SIGN UP here
15.03.2022 | ’Measuring disease severity in chronic progressive myelopathy’ by Marc Engelen, Amsterdam University Medical Center, the Netherlands. SIGN UP here
29.03.2022 | ’Antisense oligonucleotide mediated exon skipping therapy development for Duchenne muscular dystrophy takes more than an oligonucleotide’ by Annemieke Aartsma-Rus, Leiden University Medical Center, the Netherlands. SIGN UP here
05.04.2022 | ‘The logopenic variant of primary progressive aphasia (lvPPA): language, cognitive, neuroradiological issues’ by Robert Rusina and Zsolt Cséfalvay Department of Neurology at the Thomayer University Hospital Videnska in Czech Republic; Department of Communication Disorders at the Comenius University in Bratislava, Slovakia. SIGN UP here
12.04.2022 | ‘Basal ganglia diseases in childhood’ by Belén Perez Dueñas, Pediatric Neurology at Vall d’Hebron University Hospital; Vall d’Hebron Research Institute, Barcelona, Spain. SIGN UP here
24.05.2022 | ‘Mitochondrial leukodystrophies’ by Anna Ardissone, IRCCS Foundation Neurological Institute “Carlo Besta”, Milan, Italy. SIGN UP here
21.06.2022 | ‘Biofluid biomarkers in atypical parkinsonism’ by Per Svenningsson, Karolinska Institute, Department of Clinical Neuroscience, Stockholm, Sweden. SIGN UP here
12.07.2022 | ‘Importance of autopsies in leukodystrophies’ by Marianna Bugiani, Amsterdam University Medical Center, the Netherlands. SIGN UP here
20.09.2022 | ’Multiple system atrophy: translational research approaches’ by Nadia Stefanova, Medical University Innsbruck, Austria. SIGN UP here
27.09.2022 | ‘Clinical and genetic predictors of subthalamic nucleus deep brain stimulation in Parkinson’s disease’ by Daniel Weiß, Hertie Institute for Clinical Brain Research, University of Tübingen, Germany. SIGN UP here
xx.10.2022 (date t.b.d.) | ‘Use of Biomarkers to monitor the presymptomatic phase of Genetic FTD: research advances for clinical trial readiness’ by Dario Saracino and Harro Seelaar, Brain and Spine Institute, Paris, France; Erasmus MC- Rotterdam, the Netherlands
